[Jaje] Fwd: FW: [UK Biobank] Re: Exemption request for application 8256
Julia Ramirez
Julia.Ramirez en unizar.es
Mie Dic 11 09:28:14 CET 2024
For info
-------- Forwarded Message --------
Subject: Re: FW: [UK Biobank] Re: Exemption request for application 8256
Date: Wed, 11 Dec 2024 09:27:46 +0100
From: Julia Ramírez <j.ramirez en qmul.ac.uk>
To: PB Munroe <p.b.munroe en qmul.ac.uk>, William Young
<w.young en qmul.ac.uk>, Stefan Van Duijvenboden
<s.vanduijvenboden en qmul.ac.uk>, Orini, Michele <m.orini en ucl.ac.uk>,
Hafiz Naderi <h.naderi en qmul.ac.uk>, Mihir Sanghvi
<m.sanghvi en qmul.ac.uk>, Thomas Kaplan <t.kaplan en qmul.ac.uk>
Hi Patsy,
This is a great move, I asked the same question yesterday in the chat
during the conference.
I also asked if Matlab was available in the RAP, they replied that it is
possible only by using a docker image and a license, as indicated in
this link:
https://github.com/dnanexus/UKB_RAP/blob/main/Matlab/Matlab_on_UKB_RAP.pdf
I'm not sure how easy/transferable would this be, has anyone tried it?
We could argue that using a docker image is far worse than using the
installed program?
Best,
Julia
On 10/12/2024 18:20, PB Munroe wrote:
>
> Dear all,
>
> I had some correspondence with UKB over the last week and then with
> Stefan.
>
> You will see I enquired on an exemption request for access to raw ECGs
> from UKB. Stefan indicates one reason why we would want the data
> locally, can I ask for other reasons so we can see how strong a case
> we can make.
>
> The questions are:
>
> *Request for Download Exception*
>
> Required
>
> 1.Your name:
>
> 2.Your email address:
>
> 3.Your UK Biobank Project number:
>
> 4.I confirm that I am the Principal Investigator or Lead Collaborator
> on this project:
>
> Yes
>
> 5.Please explain why you are unable to complete your research in
> UKB-RAP (this will be reviewed by the Access Committee at its next
> quarterly meeting):
>
> *From: *PB Munroe <p.b.munroe en qmul.ac.uk>
> *Date: *Saturday, 7 December 2024 at 09:02
> *To: *Stefan Van Duijvenboden <s.vanduijvenboden en qmul.ac.uk>
> *Subject: *Re: [UK Biobank] Re: Exemption request for application 8256
>
> Dear Stefan,
>
> Sorry I am only getting a chance to reply now with being at a meeting.
> Let me down load the form and we further discuss including others too,
> I will prioritise for next week.
>
> Best. Patsy
>
> Patricia Munroe, Prof of Molecular Medicine. QMUL. Sent from my iPad,
> please excuse brevity and any typos
>
> ------------------------------------------------------------------------
>
> *From:* Stefan Van Duijvenboden <s.vanduijvenboden en qmul.ac.uk>
> *Sent:* Tuesday, December 3, 2024 4:43 pm
> *To:* PB Munroe <p.b.munroe en qmul.ac.uk>
> *Subject:* Re: [UK Biobank] Re: Exemption request for application 8256
>
> Dear Patsy,
>
> Anwar has used commercial software (QT guard), widely used in
> Hospitals, to analyse Hafiz’s ECGs. This software is not available on
> the RAP.
>
> Thinking about future work and validation of UKB finding (including
> his cohort), one could argue that it would be important to be able to
> test the same software? As this is probably a one-off, we should
> perhaps write the request in a very broad context such that multiple
> projects can be done.
>
> Best,
>
> Stefan
>
> *From: *PB Munroe <p.b.munroe en qmul.ac.uk>
> *Date: *Tuesday, 3 December 2024 at 14:59
> *To: *Stefan Van Duijvenboden <s.vanduijvenboden en qmul.ac.uk>
> *Subject: *Fw: [UK Biobank] Re: Exemption request for application 8256
>
> Dear Stefan,
>
> I hope all is well with you? I wished to let you know that I contacted
> UKB to ask about an exemption to download bulk data, this is the
> reply. There is a form, my question to you is should we do this and
> can justify it?
>
> Best, Patsy
>
> Patricia Munroe, Prof of Molecular Medicine. QMUL. Sent from my iPad,
> please excuse brevity and any typos
>
> ------------------------------------------------------------------------
>
> *From:* Zoe C (Access Team) <access en ukbiobank.ac.uk>
> *Sent:* Tuesday, December 3, 2024 2:54 pm
> *To:* PB Munroe <p.b.munroe en qmul.ac.uk>
> *Subject:* [UK Biobank] Re: Exemption request for application 8256
>
> Image removed by sender. UK Biobank
>
> Your request (_#550027165
> <https://community.ukbiobank.ac.uk/hc/requests/550027165>_) has been
> updated. To add additional comments, reply to this email.
>
> Image removed by sender.
>
>
>
> *Zoe C* (UK Biobank)
>
> 3 Dec 2024, 14:54 GMT
>
> Dear PB Munroe
>
> Thank you for your request for an exemption to download data.
>
> The default position is expressly UKB-RAP only and there should be no
> expectation of securing an exception. All exemption requests will be
> considered on a case-by-case basis and need to be made based on
> underlying viability/feasibility and require a summary explanation as
> to why your research project cannot be undertaken on the UKB-RAP.
> There should be no expectation of an immediate decision as it may take
> several weeks for the UKB Access Committee to consider the exception.
>
> In due course more generic guidance will be prepared and published,
> which will be based in part on the consideration of submitted exceptions.
>
> Please complete and return the attached *_form
> <https://forms.office.com/pages/responsepage.aspx?id=qJaDaRJIWE2ONsurp8w4KyZ48PApmihPm0a03j2Oj11UMlRBOVRXODlKOUMzSlpXWVFFVVczSFNSNC4u>_* which
> will then be reviewed by the Access Committee at their next meeting in
> December 2024.
>
> Kind Regards
> --
>
> *Zoe C*
> *Access Team*
> *UK Biobank*
>
> Image removed by sender.
>
>
>
> *PB Munroe*
>
> 24 Nov 2024, 17:48 GMT
>
> *** CAUTION: This email originated from outside the organisation. Do
> not click any links or open attachments unless you can validate the
> sender and know the content is safe. ***
>
> Dear UK Biobank, I would be most grateful if you can send me the form
> to apply for an exemption request for access to ECG bulk data please?
> Many thanks Best, Patricia Patricia B. Munroe, PhD, FRSB, FBIHS, FESC,
> FMedSci Professor of Molecular Medicine Centre Lead of
> Clinica
>
> _Image removed by sender.
> <https://report.mimecastcybergraph.com/?magiclink=https%3A%2F%2Fapi.services.mimecast.com%2Foauth2%2Fauthorize%3Fresponse_type%3Dcode%26client_id%3Do20nRkVXf7VUVnANkXhoOwGytEwGN0YAlyeDJn7oBTGNl2kN%26state%3DeyJhbGciOiJSU0EtT0FFUC0yNTYiLCJlbmMiOiJBMjU2R0NNIn0.CPb_pwVJOonr-3TD9NFgVErrDRv9bxfP_yfUlqQxAXHpsiDE4x--Xs_rdP4oXpzz6cZqjbN5hLUvgYeB1Y2gcb8eIvM2IZqzdfaQA0EjVP01Yq7crg2uSLY4l5Zj7L-2oErNQ3xALTv0VObQYCg1MOmTMuF_46mEwLNeUJ8nGAXpBjV_vdRhOKxcS3SrIxR8EcvZftx9iszq2RUQy1Zw_lLkdyUASM3cSxPNYlXBDRAQiN67HY3znB9HTHP-ctJr-lsxe7ivcDI3Z_YijP9sH8gOdApVmg4rfsOFC-P1vviqmqZXenBh7adCT7RHXAQa_xoQjQlodq-KXNqs3D4kNA.hj0RvI3SSy5dixmX.6mepGE0KVYyX8y7gi6JrcUQiZ5GpZ1BDreUCcFfbposzuXHodd9R6brsIST2tRa883gzblzvQKbjlJEtRaz0vbqkE8st5g1VDPFH7e5ismO39LIxzlYysvQIroAdfDGCo2qJBLBhnO-UUcNe1SPYzdtTjeBJDM0bhdSAgRoothVx2Y0z8NvUcFvl7NDi5czUX_OiokZMIX19-Vfvc10Gdyif5PRA9NQ-9ZjZmRJ0NpaONMYEze5Q1Sn4arvf_Al9kiO5vJtL48ujoAGUx9XGoJPWKN3InQcF6Jjp9gS6hIDqiVW8dtwzeSrmWh7JU-i_hHgqZLl7FrreCOcB4SWTtM615LtsLARCaATReBla5aFcL3L3Ro8FOGMp4n-4r2dicmMAmGCbQlKy3LsA-Ngbk4G26IGUNxo-EldrWR4bn2zbzUJKjlJ8kYH5EJh3M8BDli-t7c2UqMyUNsGS4dxvDTFok3XNCKyl9Pe5KKhenEQfrgIFC9wyuKGyA2nxf1_FXTCi9Zw_dXohNS-nRt0elmbhVN6Zo30QYbuf1ktQOIBetKHfDzLIgfk0ndt8UboyKY_ByNLygNOQSUdz53jyBD1fxaO6xItWw6dejFBsIfqUnSaX-cECwR5wLqZyxLiRxSVMNjzSIrwPz3oEwNGk4oDxQBIkkoant2B6OQ00xIEnJR-w9x1vJ_idE8vigxYtEVG1GEVAECWxG6XzX1IsKSLrLmyQSoPxVuTsqfBNOjHp9z6EMTG4_16YGT8fSwXpxqEfRPavsb8Dy8YEh3Y70Fmv3qxJU8jo9yGGpwPVLQ.tYkDVp4tltlR-LkHhsvdag%26redirect_uri%3Dhttps%3A%2F%2Freport.mimecastcybergraph.com%2Fcallback>_
>
> CGBANNERINDICATOR
>
> Dear UK Biobank,
>
> I would be most grateful if you can send me the form to apply for an
> exemption request for access to ECG bulk data please?
>
> Many thanks
>
> Best, Patricia
>
> Patricia B. Munroe, PhD, FRSB, FBIHS, FESC, FMedSci
>
> Professor of Molecular Medicine
>
> Centre Lead of Clinical Pharmacology & Precision Medicine
>
> Director of Barts & The London Genome Centre
>
> William Harvey Research Institute
>
> Faculty of Medicine and Dentistry
>
> Queen Mary University of London
>
> Charterhouse Square, London, EC1M 6BQ
>
> Tel: + 44 207 882 3586
>
> Email: _p.b.munroe en qmul.ac.uk <mailto:p.b.munroe en qmul.ac.uk>_
>
> Twitter: @munroe_patsy, @QMULWHRI
>
> My university webpage:
> _https://www.qmul.ac.uk/whri/people/academic-staff/items/munroepatricia.html
> <https://url.uk.m.mimecastprotect.com/s/MnH-Ck6jrFL8qQF2f8HGVyJ7?domain=qmul.ac.uk>_
>
> Electrogenomics Research Group:
> _https://www.qmul.ac.uk/whri/research/electrogenomics-group/
> <https://url.uk.m.mimecastprotect.com/s/RUPBCl8k2F90zZS9hNHzoLI4?domain=qmul.ac.uk/>_
>
> Personal Assistant: Mrs. Denise Grant
>
> Tel. +44 20 7882 2101
>
> Email: _denise.grant en qmul.ac.uk <mailto:denise.grant en qmul.ac.uk>_
>
> ________________________________________________
>
> *Adjunct Professor *
>
> Department of Physiology and Pharmacology
>
> The University of Toledo, USA
>
> _________________________________________________
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